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Happy FeedingTubeAwarenessWeek ! I have been celebrating, sharing our story, and spreading awareness for the past 3 years, which just seems crazy!! There are some days I totally forget she has a feeding tube, and other days in which it is just my nemesis. It can be a lot.
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Are you sick of giving your tubie corn maltodextrin, soy protein isolate and artificial flavors? Fed up with formula? Get started on the path to real food nourishment today. For tubie appointments, please book with Marlene or Emily. It is one of the many ways we show love. And as much as I love managing the nutrition of tubies, I also feel troubled by the use of these formulas in people with perfectly normal intestinal tracts capable of handling real food.
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An adult tubie would like to know what everyone's favorite extreme granulation tissue remedies are:. I have separate G and J tubes. Both , but especially the G, have really bad granulomas and granulation tissue. We keep cauterizing it with silver nitrate and it comes back within days. Triamcinolone hasn't helped much.
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In my dealings with doctors, I have found that they like the solutions to their problems to be neat and tidy. They want their patient to have that one diagnosis, and if their patient shows signs of more than one thing, it fouls up everything the doctor wants. I told him that they strongly suspected my mother of having myasthenia gravis, or hereditary myasthenia.

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All сomments (17)

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